Lauren’s future is the subject of an ongoing, inconclusive, worrying conversation that my husband and I have on, at least, a weekly basis. What will Lauren’s future look like? When will she need to be more independent from us? Who will oversee all the details of her life? Where will she live? Will there be enough funding to care for her for the rest of her life? We bat around ideas and scenarios. We discuss options and dreams. As of yet there are no concrete answers to these questions.
I’m sure families in similar circumstances to ours are asking the same questions. I wonder what ideas they are talking about. I wonder what they hope their child’s future will look like. I wonder if someone out there has found the answer to the same questions we have been asking. In the next few weeks, I’m going to talk to other families and see if they will share their thoughts about the future of their child. I’ll then report back to you here on what, not just my family, but what other families are looking for from themselves, their communities, and their government when it comes to meeting the expectations they have for the years to come.
So check back with me over the next few weeks to see what families are thinking about. If you’d like to tell me about your family, please let me know by sending me your contact info at firstname.lastname@example.org. I’ll get back to you with the questions I’m going to be asking families. I’m excited to hear what everyone has to say.