In a previous post I said that I would be talking to other families about their visions of the future for their child with DD. I spoke with Kay’s Mom last week about the future of her 18 year-old daughter.
On a scale from one to ten, with ten being total care and one being “I’m OK Mom, I can take care of myself.”, what is the level of care that Kay will need? She would be a 9.
Do you have a plan in place for Kay when you are no longer able to provide care for her? “No”
What are your primary concerns for Kay’s future? Kay’s Mom wants her to have “something meaningful to do with her day” She notes that everything will be dependent on the funding to make it happen.
Do you know what type of housing you would like Kay to have when she can no longer live with you? “I haven’t thought that far ahead.”
Is there someone to oversee Kay’s care when you no longer can? Kay’s brother and sister will be her guardian’s. They will not be providing her primary care but will definitely oversee her care.
Do you have an idea when you or Kay will be ready or need for her to live on her own? “Oh, ten years or so.”
What is your best hope for Kay’s future? Kay’s Mom would like her to be around people who love her and people she can love. ‘I want her to have a busy engaged life in the community.” Kay’s Mom is not sure how to make that happen.