March 30, 2010
A Future with Developmental Disabilities – Eric
In a previous post I said that I would be talking to other families about their visions of the future for their child with developmental disabilities. I spoke with Eric’s Mom recently about the future of her twenty year-old son.
On a scale from one to ten, with ten being total care and one being “I’m OK Mom, I can take care of myself.”, what is the level of care that Eric will need? Eric would fall somewhere between a nine and a ten.
Do you have a plan in place for Eric when you are no longer able to provide care for him? “I think planning for the future is out of our control.” Eric’s Mom knows that Eric’s future depends on the availability of services and it’s not a question of what her plan is but if she can plan.
What are your primary concerns for Eric’s future? Eric’s Mom wants him to live in an “environment of love, caring and with positive people.”
Where would you like Eric to live when he can no longer live with you? Eric’s Mom doesn’t care so much about where he will but how he will live. If he can get what he needs in an environment that meets all of his needs – not only physical, but emotional and social, she thinks that he will do well.
Is there someone to oversee Eric’s care when you no longer can? Eric’s Mom has a sister who is willing to step in should the need arise and Eric has a younger brother who will probably participate in his care to some extent someday.
Do you have an idea when you or Eric will be ready or need to live on his own? If there were opportunities available, Eric and his Mom would “absolutely be planning on him to move now”. Eric’s Mom feels that he is “ready now, pretty much” but there are no options for him at the present time.
What is your best hope for Eric’s future? Eric’s Mom hopes that the environment that will meet Eric’s needs will someday be available for him.
Eric’s Mom mentioned a quote that she read somewhere that says, “We all need someone to love, something to do, and something to look forward to.” And she wonders why should Eric be any different than anyone else.